Effect of Parental Limb Loss
on Parenting and Child Function
What does the study involve?
The purpose of this study is to examine the effect of parental amputation on child psychological function and parenting stress. This study uses an online survey consisting of 85 questions. Anyone who has experienced limb loss within the past 5 years and has a child in the home under the age of 18 may participate in this study.
How long does it take?
The study consists of about 85 questions and should take no longer than 15 minutes to complete.
What do I get for being in the study?
You will be able to participate in psychology research first-hand on a topic that currently has very little research with the hopes that this knowledge will help families with limb loss in the future.
How do I participate?
Enter the link of the study below into your web browser and take the survey online
Questions about this study may be directed to Dr. Sarah Heavin at firstname.lastname@example.org
The Amputee Coalition’s Paddy Rossbach Youth Camp is a 5-day traditional summer camp experience for children ages 10-17 who have lost arms and/or legs or who were born with limb differences. The camp offers challenging activities that build campers’ confidence regardless of skill level and takes place at Camp JOY in Clarksville, OH.
Video of Camp: U Tube Video of Paddy Rossbach Youth Camp
Looking for a local Support Group?
It is my pleasure to be a supporter of the
Chicago Area Amputee Support Group.
The group is held every other week and
is open to amputee's, spouses, and family members.
Please contact Korrel Rosenberg, Support Group Leader,
for more information at:
Meetings are held at the
Arlington Heights Village Hall
33 S. Arlington Heights Road
Arlington Heights, IL 60005
Northwestern University developed a extremely thin electronic device. The resulting 'epidermal' electronic device can be used as a monitoring system, designed to promote residual limb health in persons who wear prostheses, in physical forms that are 'skin like', may demonstrate key technological and scientific advancements towards evidenced-based and person-centered prosthetic care.
The work involves " Development of 'skin-like' pressure, strain and temperature sensors, with wireless operation, as well as hydration and blood flow sensors. " Development of computational modeling and algorithms for statistical signal processing of the sensor data and pattern recognition to create a user-friendly interface for clinicians and patients. "
We are very excited about this new NIH Grant.
Please feel free to contact me with any questions.
Dr. Stefania Fatone and I were invited guest speakers at the
Canadian Association for Prosthetics and Orthotics (CAPO) this past weekend.
We presented the research being conducted at Northwestern.
It was wonderful to reconnect with friends I met in Spain and make new friendships.
It was a great honor to be an invited speaker and prosthetic session Chairperson at the OT World Congress in Leipzig, Germany. I presented my research on vacuum suspension and socket technology to an audience of industry leaders.
I specifically presented on the interface between socket and residual limb being crucial to the overall success of the prosthesis user. Improved technology in liners and active vacuum systems allows prosthetists to lower transfemoral socket trim lines without compromising clinical outcomes, and clinical outcomes using a new subischial socket with a vacuum assisted suspension: the NU-FLEXSIV.
"OT World is run by national and international partners from all different sectors of industry and science, as well as service providers. OTWorld is the most effective platform for sharing research and knowledge as well as current trends and innovations in technology. Orthotists, prothetists, technicians, therapists, doctors, engineers and funding organizations will all be gathered at the Congress."
It was an honor to represent Northwestern University Department of Physical Medicine and Rehabilitation as well as Scheck and Siress.
THE RANGE OF MOTION PROJECT
The Mission of ROMP is to provide prosthetic limbs and orthotic braces to those who cannot afford or do not have access to these services, empowering them to actively contribute to their families and communities.
ROMP provides prosthetic limbs, orthotic bracing, and training throughout the developing world. Our goals are to:
- Increase US awareness of the lack of rehabilitative medicine throughout the world.
- Assemble teams to evaluate and fabricate prosthetic limbs for amputees within Zacapa and other areas with amputees in need throughout the developing world
- Train local practitioners to pursue ongoing and sustainable services in the communities we work in.
The Vision of ROMP is a more equal distribution of prosthetic and orthotic services throughout the world, facilitating independence through mobility.
ROMP recognizes the hardship of living in poverty without a prosthetic or orthotic device and understands how important these, often times simple devices, are to those who do not have access to them.
In many cases, a prosthetic or orthotic device is a critical component in a disabled person's rehabilitation. With this "tool", independence, mobility and involvement in community and the socio-economic structure can become more attainable. Rehabilitation has the power to increase visibility of the disabled and awareness can change attitudes and help people see that "disability" is only as crippling as the barriers we let stand in our minds and in our world.
Together, with the help of trained prosthetists and orthotists, care givers, volunteers and generous donors, ROMP's vision of offering independence and hope to countless individuals will become a reality.
CONTACT USRange of Motion Project, NFP
PO Box 1084
Deerfield, IL 60015
Equipment Donation Address:
Attn: Mike Angelico
8641 W. 95th St.
Hickory Hills, IL 60457
(click on link above)